Rome, April 28 (askanews) – Waiting for digital healthcare to become a reality on a national scale, also thanks to PNRR funds, the third sector is making the first move: ‘AMICI WE CARE 2.0’, the first digital support platform, is online today to patients, developed by Amici Onlus, a reference association for people with chronic inflammatory bowel diseases (IBD), namely Chron’s disease and ulcerative colitis.
AMICI WE CARE 2.0 is above all an ecosystem of services: from the possibility of booking and downloading laboratory tests – which will also be carried out through home withdrawals – to free teleconsultations with specialists, nurses, psychologists and legal experts, up to telemonitoring thanks to the aid of cutting-edge and certified wearable devices. The platform aims to promote a more active role of the patient, who is thus more involved and aware of their care path. The proposal is that of a model of ‘participatory health’ that exploits the potential of digital health and therefore favors a more effective and efficient management – because it is more aware – of one’s health condition. At the same time, the platform will allow the collection and updating of a huge amount of data – continuously validated through the interactions between professionals and patients – which are candidates to become the most concrete and mature example of Patient Reported Outcome built starting from a digital infrastructure, and therefore able to support the decisions of decision makers in the clinical field, but also in the governance of the pathologies involved.
‘FRIENDS WE CARE 2.0’ was presented today in the Senate – on the occasion of the go live – during a press conference organized on the initiative of Sen. Maria Alessandra Gallone, President of the MICI Parliamentary Intergroup. In addition to the architecture of the digital project itself, the ability of the Patient Association to attract partners of absolute reference, at an international level, for the management of implications related to data processing and privacy – with Studio Panetta & Associated – in laboratory tests – with Federlab – in teleconsultations – with the CGM Group – and in remote monitoring – with Comftech.
‘Chronic inflammatory bowel diseases – declared Pierpaolo Sileri, Undersecretary of State for Health – have always been at the attention of the institutions. In fact, we have set up a working group with the aim of strengthening attention to these pathologies. We are working to promote initiatives aimed at strengthening the diagnosis and treatment of IBD, to give answers: to prevent the patient, who lives with that physical and psychological pain, from getting lost through complex models that slow down the diagnosis at the expense of the success of the path of care ‘.
‘The Amici Onlus Association, which has been close for years, he maintains, helps people suffering from chronic bowel diseases, today takes an important step forward with the first patient support platform. A tangible sign of the extraordinary commitment of all those who work in the association and who represent a point of reference for men and women but also young people and children who daily face often disabling diseases’, declares Senator Maria Alessandra Gallone, President of the Parliamentary Intergroup MICI. ‘As a parliamentarian I wanted to be alongside Amici by supporting this precious activity in every way and by creating an interparliamentary association for the protection of people with chronic intestinal diseases, which in Italy number more than 250,000. It is a source of pride for me to present this web platform, which allows to reduce time and space and to be close to those who suffer, favoring the sharing and active participation of patients. With the awareness that this is the start of an important phase for the association and for all patients who refer to it ‘.
‘Understanding how digitalization can contribute to responding to the life and care priorities of patients is complex, for those who do not live the experience of illness. Instead, designing the future for a patient association and creating the first example of an integrated patient care system and promoting digitalisation capable of involving patients, caregivers, the scientific world and institutions is an example of extraordinary analytical skills. and programming of a third sector body ‘, comments Giuseppe Coppolino, President of the National Association AMICI Onlus. ‘We are sure that AMICI WeCare will be the source of numerous projects that will contribute to enriching the field of scientific research, thanks to the extraordinary awareness of the community we represent that the future of healthcare must increasingly involve patient associations, identifying among these those capable of operate with future projections and engagement of all stakeholders’
‘We can and we know that much can be done thanks to digitization and on this issue the opportunities offered by the PNRR will be fundamental to transform healthcare and the NHS. Obviously the transformation, since it involves both the adaptation of health systems and, above all, a cultural evolution, will take place over a medium-long period and will proceed in patchy fashion ‘, comments Salvatore Leone, Director General of the National Association of AMICI Onlus. ‘But when interests of this magnitude set in motion, it is impossible for them to stop. The impact of digital technologies on the entire healthcare system is destined to be epochal and long-term and AMICI, with the launch of this platform, proposes itself as a privileged interlocutor of both the scientific community and the institutions to provide useful data to ensure better assistance to the patients we represent. We are confident that there is a way to find a definitive cure and FRIENDS WeCare is heading in that direction. ‘
‘AMICI WECARE2.0’, created with the non-conditioning contribution of Biogen, Galapagos, Pfizer and Janssen, makes use, as anticipated, of the collaboration of leading technical partners, for the purpose of implementing the digital solutions offered to patients: The teleconsultation service uses the ‘CLICKDOC’ platform of CompuGroup Medical (CGM) Italy, leader in reliable and quality remote specialist assistance. Thanks to the partnerships with Federlab and ComfTech, patients registered on the platform will also be able to obtain, respectively, laboratory diagnostic services at a subsidized rate and digital wearable devices for monitoring, for example, cardiac and respiratory parameters.
‘Protecting patients’ health data is protecting a part of them and their health. The AMICI Onlus platform was developed with this in mind, taking into consideration the most innovative principles of the GDPR, such as Privacy-by-Design and accountability ‘, comments the lawyer. Federico Sartore, Counsel PANETTA Law Firm.
‘We are proud to be alongside AMICI Onlus in a truly innovative, almost visionary project in the third sector. AmiciWecare 2.0 focuses on the patient, with the aim of simplifying the relationship with healthcare professionals, improving the accessibility and quality of remote assistance ‘, declares Alberto Pravettoni, General Manager CGM TELEMEDICINE, the division of the CGM Italia Group specialized in the development of solutions and technologies in the field of telemedicine. ‘We immediately accepted to participate in this project because it perfectly embodies CGM’s mission: to provide the healthcare ecosystem with technological solutions that truly revolve around the patient, taking care of them anytime, anywhere, and that promote a concept of’ participatory health ‘: with positive repercussions on the efficacy of care and on the daily work of the various professionals involved in taking charge ‘.
‘We are pleased to contribute to the vision of Amici Onlus by making our diagnostic services available as essential and essential tools for the correct monitoring of the disease. Careful and timely monitoring by the patient, which can contribute to strengthening empowerment also with respect to a broader attention to correct lifestyles and prevention ‘- comments Gennaro Lamberti, President Federlab. ‘We design our wearable systems with great attention to the quality of the data, but also to the daily needs of the patient’ – declares Alessia Moltani, CEO Comftech Srl. ‘Our mission is to offer monitoring of physiological parameters in everyday life, without limiting normal activities . Therefore, it is a pleasure for us to collaborate on this visionary and well-structured initiative ‘.